Thursday, January 9, 2025

 

142 – Moving Away from the Drain, Part 1: 9 January 2025


This was me on Tuesday 9 September 2019 in Ireland, two months before I started losing weight under the supervision of a dietician.  Note the size of my stomach.  I weighed at least 105 kilograms then – 30 kilograms more than I weighed when I went into hospital in July 2021.

****

My Third and Final Hospitalisation - July 2021

My final hospital admission took place on Saturday 3 July.  I had rung the rooms of my lung specialist on Thursday 1 July asking for an urgent consultation with Dr Aiyappan.  Dr Aiyappan was on holidays, but the rooms promised to tell him about my plight. 

Dr Aiyappan rang me no more than 2 hours later and promised to find me a hospital bed.  Dr Aiyappan persuaded the hospital to admit me once again, this time on the Saturday morning. 

I was in extremely bad health when admitted and Dr Aiyappan saw me in the hospital even though he was on leave.  Under his orders, a lung function test took place later that day.  This test involves the patient blowing air into various tubes to measure how much air the lungs are processing.  My lung function test said that my lungs had only 42% of the capacity of “normal” lungs.  I am certain my breathing during the test was actually better than my breathing had been in the 3 weeks since my June 2021 hospital admission.  I desperately wanted to get a "good" result and I tried hard to produce a “good” result; I was actually trying much harder during the test than I was normally able to do outside the test environment. 

I am certain my actual capacity was significantly less than the 42% measured in the test.

****

My weight was regularly measured while I was in hospital and I wrote down the results.

Between the morning of Friday 2 and Sunday 4 July, I dropped 1.3 kilograms in weight.  This Table outlines my weight in July 2021.

July 2021

Date

Weight

Friday 2 July

75.0 kilograms

Sunday 4 July

73.7 kilograms

Sunday 11 July

76.1 kilograms

Friday 16 July

76.6 kilograms

Friday 23 July

76.4 kilograms

Friday 30 July

77.2 kilograms

 

In the three weeks and five days between Sunday 4 July and Friday 30 July, I gained 3.5 kilograms (7 pounds, 11.46 ounces).  The weight increase shows the success of this final period of hospitalisation – especially when compared to the June 2021 period of hospitalisation.

****

Before my July hospital admission, I had a prearranged appointment with my cardiac specialist Dr Goh on Monday 5 July.  Even though I was still an admitted hospital patient, I took a taxi to the appointment with Dr Goh.  I gave him the medication list I had already given to the hospital staff.  Dr Goh immediately said that the combination of Amitriptyline Alphapharm with Aspirin was dangerous and that I must not continue to take the Aspirin.  Dr Goh then gave me a handwritten a note in a sealed envelope and told me to give it to the hospital staff immediately I returned to hospital.

As well as giving me the note, Dr Goh ordered that I be given an Echocardiogram (Echo) test as soon as possible after I got back to hospital.  It was obvious to me that Dr Goh was very concerned that my hospital treatment was ignoring my known and documented heart disease.

I delivered the note from Dr Goh to the nursing station when I returned to hospital and stressed Dr Goh’s insistence that I must not be given any further Aspirin.  The Echo test on my heart was carried out later on that same Monday.  Nothing of significance was uncovered by the Echo test.

The note by Dr Goh initiated the treatment changes which led to my diagnosis and correct treatment, but the only noticeable immediate changes he brought about were the stopping of the Aspirin and the Echo test.

****

Dr Aiyappan did a bronchoscopy on Wednesday 8 July 2021.  It revealed no abnormalities.

****

Although I had been admitted to hospital by Dr Aiyappan, I had been placed under the care of Dr Dinesh Kannusamy, who had been my hospital doctor during my June hospitalisation.  Dr Kannusamy saw me again in the morning of Tuesday 6 July and prescribed a new medication on top of the Amitriptyline Alphapharm he had prescribed in June.  I cannot now remember the name of this additional medication, but I am now certain it was another anti depressant.  I reluctantly took the additional pill as instructed by Dr Kannusamy on Tuesday 6 and Wednesday 7 July.  The nursing staff may also have given me this additional anti depressant on Thursday 8 July.  

I had never suffered from depression and had never been diagnosed as suffering from depression.

Dr Aiyappan visited me in hospital in the early morning of Thursday 8 July and I told him I did not want to take the new medication and asked him if he could terminate it.  My intention was to first get rid of the new anti depressant and then ask to have the Amitriptyline Alphapharm terminated as well.  Dr Aiyappan said that he would see what he could do.

****

Shortly after Dr Aiyappan left my room– perhaps ten or fifteen minutes later – a new doctor whom I had never seen before, entered my room.  I cannot now remember his name but my health insurance claims history tells me I was treated on 9 July by Dr Boey, so the new doctor was probably Dr Boey.  Dr Boey (if he was in fact the new doctor) was wonderful.

The doctor confirmed that I did indeed want to terminate the new medication and then immediately gave instructions to staff to do that.  My hospital treatment changed noticeably after the visit by Dr Boey.

In my room, there was a small whiteboard where the name of my treating doctor was written at the top.  Dr Kannusamy’s name was written on this whiteboard.  Later, on that Thursday, Dr Aiyappan’s name was written immediately under Dr Kannusamy’s name.  Although Dr Kannusamy’s name remained on the whiteboard, I never saw him again. 

On Friday 10 July, Dr Boey visited me again and recommended discontinuation of the Amitriptyline Alphapharm.  He said Amitriptyline Alphapharm was a “very old fashioned” medication and that it was “highly addictive”.  I agreed and he had the Amitriptyline Alphapharm discontinued over the next three days.

****

I did not know it then, but my health was about to improve quickly now that I was in compassionate and competent medical care.

I was about to have a miracle cure.



Wednesday, January 8, 2025

 

141 – Circling the Drain, Part 8: 8 January 2025


This was me in November 2015, three years before my November 2018 Chain Saw operation.  I was in relatively good health then.

****

The deterioration of my health in June 2021 was significant and I approached ever closer to the Death Drain.

The extent of me deterioration is highlighted by this Table of my scheduled exercise compared to the exercise I was in fact able to do in the three weeks after my hospital discharge in June 2021.  This Table cannot show my ever increasing pain and my ever increasing difficulty in doing the exercise I actually managed to do.  I used unrelenting willpower and forced myself to do exercise in that terrible month of June.  I was barely able to do the reduced exercise I in fact did.

Saturday 12 June 2021 to Friday 19 June 2021

Date

Scheduled Exercise

Actual
Exercise

Saturday 12 June

1 hour walking at home, plus 30 minutes yoga

Nil

Sunday 13 June 2021

3 ½ hours at Morialta

1 hour “Perimeter Prowling”

Monday 14 June

1 hour walking at home, plus 30 minutes yoga

½ hour “Perimeter Prowling”

Tuesday 15 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Wednesday 16 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Thursday 17 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Friday 18 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

****

 

Saturday 19 June 2021 to Friday 26 June 2021

Date

Scheduled Exercise

Actual
Exercise

Saturday 19 June

1 hour walking at home, plus 30 minutes yoga

1 ½ hours walking at Morialta

Sunday 20 June

3 ½ hours walking at Morialta

1 hour walking at home

Monday 21 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Tuesday 22 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Wednesday 23 June

1 ½ hours yoga in studio

1 ½ hours yoga in studio

Thursday 24 June

1 hour walking at home, plus 30 minutes yoga

Nil

Friday 25 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

****

 

Saturday 26 June 2021 to Friday 2 July 2021

Date

Scheduled Exercise

Actual
Exercise

Saturday 26 June

1 hour walking at home, plus 30 minutes yoga

Nil

Sunday 27 June

3 ½ hours at Morialta

1 ¾ hours at Morialta

Monday 28 June

1 hour walking at home, plus 30 minutes yoga

Nil

Tuesday 29 June

1 hour walking at home, plus 30 minutes yoga

1 hour walking at home; nil yoga

Wednesday 30 June

1 hour walking at home, plus 30 minutes yoga

½ hour walking at home; nil yoga

Thursday 1 July

1 hour walking at home, plus 30 minutes yoga

Nil

Friday 2 July

1 hour walking at home, plus 30 minutes yoga

Nil

****

I completely gave up on trying to go to bed during this three week period.  The pain and coughing made sleep impossible and the only result of me going to bed was a guarantee that Margaret’s sleep was destroyed as well as mine.  Instead of going to bed, I stayed sitting on the sofa doing crosswords, reading or listening to music through headphones.  Occasionally, I was able to doze for an hour or two while sitting upright. 

Those three in June were so very, very hard.

****

The more severe my symptoms became, the less I was able to eat.

This Table identifies specific meals my symptoms prevented me from eating in those three weeks June 2021 after my discharge from hospital.

Week One: 12 June to 18 June

Date

Breakfast

Lunch

Dinner

Saturday 12 June

 

None

Nil

Sunday 13 June

 

None

Bowl home made soup

Monday 14 June

1 ½ slices toast

None

Bowl home made soup

Tuesday 15 June

1 ½ slices toast with 2 boiled eggs

 

 

Wednesday 16 June

 

 

1 corn on the cob

Thursday 17 June

 

 

 

Friday 18 June

 

 

 

****

Week Two: 19 June to 25 June

Date

Breakfast

Lunch

Dinner

Saturday 19 June

 

None

Nil

Sunday 20 June

 

 

Bowl home made soup

Monday 21 June

 

 

 

Tuesday 22 June

 

 

 

Wednesday 23 June

 

None

Bowl home made soup

Thursday 24 June

 

1 apple

½ slice feta and spinach pie

Friday 25 June

 

 

 

****

Week Three: 25 June to 2 July

Date

Breakfast

Lunch

Dinner

Saturday 26 June

 

None

 

Sunday 27 June

 

None

 

Monday 28 June

 

None

None

Tuesday 29 June

 

 

 

Wednesday 30 June

 

 

 

Thursday 1 July

1 slice of toast with 2 boiled eggs

1 biscuit

 

Friday 2 July

 

 

 

****

 The less I was able to eat, the more weight I lost

June 2021

Date

Weight

Friday 4 June

77.9 kilograms

Saturday 12 June

76.5 kilograms

Tuesday 15 June

75.2 kilograms

Friday 18 June

75.5 kilograms

Friday 25 June

74.9 kilograms

By the morning of Friday 2 July 2021, my health was dreadful and I clung to life by the thinnest of threads.

Blog No. 188 - Dealing With HCF in July 2022, Part 5: 24 February 2025

**** Part 5 of my 8 July 2022 letter to Mark Johnson, Chairman of HCF. **** Margaret took this photo of a pademelon in Tasmania on the 13th ...